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Main Phone : 1 201 312 8102

givehope@dreamscapefoundation.com  9 Marcin Way

Flanders, NJ 07836

Usher syndrome is a condition characterized by hearing loss or deafness and progressive vision loss. The loss of vision is caused by an eye disease called retinitis pigmentosa (RP), which affects the layer of light-sensitive tissue at the back of the eye (the retina). Vision loss occurs as the light-sensing cells of the retina gradually deteriorate.

Usher syndrome (US) is inherited, which means that it is passed from parents to their children through genes. Genes are located in almost every cell of the body. Genes contain instructions that tell cells what to do. Every person inherits two copies of each gene, one from each parent. Approximately 3 to 6 percent of all children who are deaf and another 3 to 6 percent of children who are hard-of-hearing have Usher syndrome.

 

 

What Is Usher Syndrome?

What Causes Usher Syndrome?

Because Usher syndrome affects hearing, balance, and vision, diagnosis of the disorder usually includes the evaluation of all three senses. Evaluation of the eyes may include a visual field test to measure a person’s peripheral vision, an electroretinogram (ERG) to measure the electrical response of the eye’s light-sensitive cells, and a retinal examination to observe the retina and other structures in the back of the eye.

LHON DIAGNOSIS

"Our goal is for people with disabilities and diseases to no longer forgo on experiences in life, help me make a difference because

I lost my sight - not my vision"

- Joseph Sehwani, Founder of Dreamscape Foundation

Help support the cause Usher Syndrome (US) by supporting the Dreamscape Foundation. With your help and donations we will be able to accomodate individuals impacted by Usher Syndrome and carter to their day to day activites. Together we can turn our dream into reality.

 

 

JOIN THE FIGHT

"Our goal is for people with disabilities and diseases to no longer forgo on experiences in life, help me make a difference because

I lost my sight - not my vision"

- Joseph Sehwani, Founder of Dreamscape Foundation